When Chase Langland’s parents received the devastating diagnosis of Spinal Muscular Atrophy (SMA) Type 1 when he was only 7 1/2 months old, their lives changed forever. SMA is a disease which affects muscular development and causes weakness that compromises mobility, digestion, and a child’s respiratory system. This frightening genetic disorder is the number one killer of children under the age of 2.
Despite statistics that show an average lifespan of 8 months in children with SMA, Chase has beaten the odds having celebrated his 5th birthday on June 1st, 2010! Although he has had it tougher than most kids his age, if you check out Chase’s photo album you will be hard pressed to find a single picture in which he isn’t smiling. He is a happy boy, who loves to cuddle, play with his toys, and flip the pages when his mom reads to him.
However, while his parents cherish every precious moment with their son, as Chase has gotten older the challenges of carrying him and his life saving equipment up and down the stairs at their home has become more and more challenging. Also, trying to get Chase in out of the family’s unconverted van is proving to be more of an obstacle. Like most parents in their situation, the Langland’s have avoided asking for help.
“I feel bad asking for things because I know that even though we have some hardships, there’s always someone else worse off,” says Sherry Langland, Chase’s mom.
Fortunately, Sherry and her husband have not had to ask, because they are surrounded by amazing family and friends who have gotten connected with Building Blocks for Kids (BB4K). BB4K is a non profit organization helping improve the quality of life for children with health related needs. The organization is planning an exciting fundraiser to help raise funds for a wheelchair elevator or home lift, as well as a handicap accessible van.
If you are as moved by Chase’s story as we are, here’s how you can help:
- Attend the fundraiser set for November 1st at 6pm at Rick’s Tavern Grill in Fairfield, OH. The cost is only $10/person and includes a buffet dinner, live band, silent auction, raffles, door prizes, and all while enjoying the company of some amazing Bengals Players.
- Visit Chase’s website to read more about his story and how to make a donation to Families of Spinal Muscular Atrophy and help find a cure
- Go to Building Blocks for Kids website and donate directly to Chase’s cause by becoming one of his sponsors.
We will be following Chase’s fundraising story closely, to help the Langland’s reach their goal. With the community’s help, the Langland’s will be able to regain their family’s independence and allow Chase to focus on what’s really important…being a kid.
M.C. Mobility Systems is lucky to be able to work with amazing families with incredible stories of hope and perseverance every day. If your family is in a similar situation to the Langland’s contact us at 1-800-503-0052. We will put you in touch with organizations in your area that can assist you with fundraising efforts like the Langland’s. You can also contact us via our website, by filling out the form below.