Support Group Spotlight: MDA

mobility resources

MDA is a special support group that we partner with for events and donations. This group is amazing for people affected by muscular dystrophy and we are happy to feature them in this week’s blog post. Please check them out if you feel like you would fit in with this group or if you would like to volunteer. The people are amazing and their website has a lot of great information. We asked MDA a few questions about their group – Let’s see what they had to say!

What is the main goal that MDA has for its members?

If you or someone you love is affected by muscular dystrophy, ALS or related muscle-debilitating diseases, please know you’re not alone. MDA stands alongside our families in our communities to assist and empower the kids and adults we serve. We care for kids and adults from day one so they get the very best treatment. And, we empower families with services and support in hometowns across America to help them thrive and stay independent, including summer camps for kids, support groups, equipment assistance and more.

How can people with neuromuscular diseases get involved with this community?

MDA special events are a fun way to join your community in raising vital funds and awareness to support families living with muscle-debilitating diseases. Your involvement enables MDA to fund research breakthroughs across diseases, care for kids and adults from day one and empower families with services and support. Local MDA events include Muscle Walk, Team Momentum, Lock-up, Fill-the-Boot, Shamrocks and many more! Go to www.mda.org/get-involved/participate-in-an-event for more information about MDA Special Events.

How can others volunteer or get involved?

Volunteers are the driving force that enables MDA to support families in hometowns across America. Our volunteers are the heart of MDA’s programs, making experiences like Summer Camp, support groups, seminars, special events and many other initiatives possible for families who are counting on us. Go to www.mda.org/get-involved/become-a-volunteer and complete the short interest form for more information.

Together, we are stronger. That is why we are asking you to join us in advocating for policies that advance biomedical research, ensure that safe and effective treatments are developed and delivered as quickly as possible, improve access to care and services, and maximize opportunities for independence. Whether you are living with a muscle debilitating disease, or love someone who is. Whether you are a researcher, a health care provider,  a teacher, or a community leader. We need your help. MDA advocates are actively engaged in every state across the nation, and in almost every U.S. Congressional district. With your help, we will continue to make a positive impact. Please take a moment to explore MDA’s advocacy pages at www.mda.org/get-involved/mda-advocacy to learn more about policies and issues that impact our community, and ways you can get involved. Every MDA advocate is essential to progress, and everyone is welcome. We hope that you will join us in making a difference today.

Are there any upcoming events?

MDA Muscle Walk is a life-changing event that strengthens families and communities. In more than 150 hometowns across America, every event includes a 1- to 3.1-mile lap designed for participants of all ages and abilities, including a wheelchair and equipment friendly course. Leading up to the event, participants and teams fundraise to help MDA find research breakthroughs across diseases, care for kids and adults from day one and empower families with services and support to live longer and grow stronger. Muscle Walk is more than a fundraising walk. It’s a powerful experience that forges lifelong connections, celebrates families and the barriers they overcome and turns hope into answers. Locally, the Dayton Muscle Walk will take place on September 9th, 2017 and the Cincinnati Muscle Walk will take place on September 23rd, 2017. Learn more and sign up today at www.mdamusclewalk.org.

Contact the Southern Ohio MDA Office at 513.231.2222 for more information about local MDA events.

Anything else you would like to add?

Check out MDA.org. Here you’ll find comprehensive information and resources that can make a critical difference in understanding, managing and living day-to-day with muscular dystrophy, ALS and related muscle-debilitating diseases that take away physical strength and mobility. You can also explore ways that you can get involved to help families live longer and grow stronger.